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Today I want to write about things I do when I come up with ideas and I don’t have the time or energy to sit and type them. I call it the “down day” but actually it’s a “rest day”. But I have to go back to what I have written before and how it makes me feel good even though tough, but it makes me feel good to get through it and to write about the situation. Also, I may not want to anything at all that day or week. That is okay with me, too. I am at peace with it.


I’ve had a few doctors tell me Donna when you go to bed, don’t do anything else just sleep, prayer read good things about praying. But if you have difficulty sleeping? And, doing other things in your bedroom can remind you of those other things when you are trying to sleep. I am going to do an experiment about that with myself and how I am I have these rest days and maybe just maybe I do other things when I have to lay down right? I will see how this works out…


My brother bought me an android phone a couple years ago. He knows about my fatigue and he said you can do your a lot with your phone and have fun and things you would like to do from your using android while you are resting if you care or want to… I though hmmm…  You can use your android and I do I do use e-mails updating. May not be the best thing for me because I have environment illness (but I have found the android very helpful in spite of all I am saying….also. I need to be able to communicate with other Gees I have been home bound since May 2011… I need some kind of outlet. One of my doctors said yes actually if maybe healthier to do. So, I limit times.  I am flexible with that. Need to be. It works.

1 “Environmental illness can occur when you are exposed to toxins or substances in the environment that make you sick. These health hazards may be found where you live, work, or play. Maybe you have headaches that only occur on weekends.” Oh goody gumdrops for me … I get hit whichever way I turn it looks like. But it is not taking me down. I have to smarter than the illness and outsmart it as best I can. It is not easy at times for anyone but I need to try. Believe, me a lot of people do not understand that about me. So then I need to move on from that to…It is lonely but…  Because I need to know what I need to do… take care of myself. Is the best thing. My faith has gotten stronger, too.

Getting back to the android. The computer is easier to work on if you’re trying to delete a lot of messages because you could do much more in a quick space and larger to see on a computer than on the phone in less time if time is the issue.


Now to get back onto my subject about the fatigue and how I handle that and am so happy about that. I have to be careful all times I understand that a lot of things going on. But I don’t want to dwell on that stuff will go forward and just be flexible as best I can. Because if I dwell on it … it is like going to hell. I ain’t goin. God be with me. He is! And you too for the asking!


Sometimes I can write, sometimes I cannot write. Sometimes I can talk, sometimes I cannot talk. Sometimes I take the mental notes, but remember itis due to my strokes. So what to do?  This is what I do I rest and quiet mysefl and I just be.But, when I am quiet (JUST BE) and follow my gut (SPIRIT) whatever you like to call it. It works out much better ALL THE TIME! When I feel that peace is right. This is how I know I have made the right decisions. I find words that flow much better.



I know that God, my praying, my rest time and just being is good healing for me. I ask God if I cannot write or talk at this point in time or take notes for me to do my post. things like that to go forward my memoir please give me the words when I go to do it. Also, would you give me the creativity to be able to do it in such a way that people understand it and are able to communicate with me.


Chronic fatigue has been around for years. As my neurologist told me that I have it from taking my strokes and this can happen he said: “stroke can cause fatigue”. My Lyme Dr.LLMD  says is from Lyme Disease well I guess it is a combination of the two I think here at this point in time.

I think about Florence Nightingale she had a really tough job. She loved it. Here is a 2 quotes´•Florence Nightingale – English Nurse – Her illness began in 1896 after she returned from the Crimean War and spent years housebound, too fatigued to talk to more than one visitor at a time. Her birthday –May 12, 1820- is celebrated as International ME/CFS and Fibromyalgia Awareness Day. •Florence Nightingale – English Nurse – Her illness began in 1896 after she returned from the Crimean War and spent years housebound, too fatigued to talk to more than one visitor at a time. Her birthday –May 12, 1820- is celebrated as International ME/CFS and Fibromyalgia Awareness Day.

Also, other celebrities that had problems with this chronic fatigue. It just makes a person feel good to understand that others also have it too. Or does it? There is lot the research out there on chronic fatigue.

I believe I read that Florence Nightingale did a lot of her work from her bed after she got sick sound familiar… I’m not any Florence Nightingale but there are a lot of similarities in the way that we need to work. So you can learn from other people.


Also, another thing is I have sleep apnea. This can cause restlessness during the day. So, I don’t think it’s anything I’m doing at night when I am going to bed. I try to stay away from anything negative that causes me to think too much about something that’s not good. Unless, I’m going through something I cannot or can help it. Then I go back into pray ( or at least try too.

I hope this post was inspiring, insightful and educational for all.  Us memoirist we bleed out our souls, but you all may not feel that reading our stuff.  See this is very private for me.  I do not mind talking with a good friend, but I am trying to bare it all here. With that said it is great to have you all along for this journey. It may sound contrary but I am not.  I made my mind up years ago I wanted to this. This is great that I am able to it. Counting my blessings and you are all in them.  Thank you for the visit. Please read, comment, like…. thank you.   Blessings!!!




copywritten 2016 donna marie de Guglielmo

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God is paradise. We are His to soar in His grace and mercy.


  1. That’s good advice: JUST BE. Our world always seem so busy, even leisure time is jampacked with events or entertainment. How often are we just quiet? How often are we just quietly at peace with ourselves – and with God? Sometimes, I think people are afraid of slowing down that much, because they are not at peace with themselves. That’s why I find your advice so beautiful, and especially so appropriate for memoirists. Yes, we do have to make ourselves vulnerable to tell our stories. Thank you for telling yours! I will try to keep your advice in mind and heart. Thank you!

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